A Poem About Being a Teen with IBD by a Teen with IBD
While I work hard to provide you with accurate and up-to-date information at the time of publishing, as time passes some information may no longer be relevant or accurate. The field of medicine is a constantly evolving science and art. Thankfully! In 1951 a woman was given a lobotomy to treat her ulcerative colitis. That wasn't even that long ago!
Because here we know everyone bleeds sometimes.
Because I like myself most when I’m here; am joyous and
loving and less afraid. Closer to the person
I want to be.
Because leaving this and leaving friends who are more like
tears me to pieces
and coming back feels like coming
Because we have to be Crohn’s and UC kids
all the time
and not one more kid should have to be that.
Because I have seen pain I can barely understand splayed on the faces of my sisters.
Because I have seen them fight with courage.
Because sometimes it’s so much
easier to give up;
because medicines stop working and our
bodies get tired and it’s
so. hard. to go forward; so hard to be grateful,
hard to be loving,
hard to feel stronger,
hard to be vulnerable and
open when our broken places still
But because my sisters around me are doing the same,
crying with me and singing encouragement,
falling and hurting and rising and loving with
because here, together, we are strong enough.
This is a poem written by one of my campers at Camp Oasis Michigan about being a teen with IBD and her experience of camp. Thanks to Liv for allowing me to post your poem.
This post was edited on 7/15/2019 for appearance, grammar, and clarity, as I transfer my site from Tumblr to WordPress and rebrand Inflamed & Untamed.