Sara Ringer
Digestive Disease Patient Advocate
Sooooo keeping track of everything I’ve done is not my strong point. Actually it’s pretty far down the list of things I’m good at. Actually it’s not even on the list of things I’m good at! But here is what I have kept track of in the past decade of my life as an advocate
OVERVIEW
- - Founder of Inflamed & Untamed
- - YouTube creator with content focused on health
- - Member of several patient advisory boards
- - Co-Founder of Gut Over Here Patient Meetup events
- - CCFA Camp Oasis Michigan LIT Program Director and camp counselor 2009-2016
- - Consultant, Speaker, and Educator on several topics concerning IBD, motility diseases, and living with chronic illness
- - One of the original 3 Founders of Girls With Guts
2020
PRESENTATIONS/PROJECTS/ADVOCACY WORK
IIFGD Patient Panel
Member of CCF Patient Education Advisory Taskforce
PROPS Member: Patient Reported Outcomes After Pouch Surgery
Member of NORD Rare Action Network
IBD Social Circle Member
P2PEP Advisory Board
P2PEP speaker
Chronic Disease Coalition Ambassador
Rare Disease Day for Rare IL to lobby on issues that matter to rare disease patients (Upcoming March 4)
Digestive Disease National Coalition Spring Public Policy Forum (Upcoming March 1-2)
EDUCATION
Crohn’s Colitis Congress conference (Upcoming Jan 23-25)
P2PEP19 (Upcoming in April)
Digestive Disease Week (upcoming)
Oley Foundation Annual Conference (upcoming)
2019
PRESENTATIONS/PROJECTS/ADVOCACY WORK
Co-author: Listening to the Patient: Improving the Design and Conduct of Clinical Trials in Inflammatory Bowel Diseases (upcoming publish date)
Patient Advisory Board for Patient-to-Patient Education Project at University of Michigan
AGA IBD Parenthood Project partner
Speaker at Genentech San Francisco: How Patients Feel About the Endpoints in Clinical Trials and What Matters to Them
Speaker at Genentech San Francisco: The Cost of Being an IBD Patient – It’s More than Just Money
CCF Twitter chat host (with Dr. Christina Ha): The Cost of Care in IBD
PROPS (Patient Reported Outcomes after Pouch Surgery) study participant
Member of the IBD Social Circle
Member of CCF Patient Advisory Task Force
Chronic Disease Coalition Ambassador
Clara Health Breakthrough Crew member
WEGO Health Patient Partner
Consultant to Genentech, Janssen, Abbvie, CCF, Roche
IFFGD Patient Advocate panel
Author and moderator for InflammatoryBowelDisease.net
EDUCATION
Crohn’s Colitis Congress conference
P2PEP19
Digestive Disease Week conference
Oley Foundation Annual Conference Online attendee
2018
PRESENTATIONS/PROJECTS/ADVOCACY WORK
Presentation of my experience as a Crohn’s Patient and Advocate to Genentech Chicago
Co-Leader of Sex and Intimacy with Chronic Illness discussion at the HealtheVoices18 conference
Instagram takeover for the CCF Instagram account on World IBD Day
Twitter takeover for Duke GI at Digestive Disease Week
Co-host (with Shawn Bethea of Chronically Strong blog) of Twitter chat on the topic of Holiday’s and Chronic Illness for the Girls With Guts account
Member of the CCF IBD Patient Advisory Task Force
HealtheVoices Impact Fund Advisory Board member
Chronic Disease Coalition Ambassador
IBD Social Circle member
DripDrop ORS Ambassador
WEGO Health Patient Partner
Clara Health Patient Ambassador
Consultant to Janssen, Abbvie, ThriveRx, Celgene, Takeda, CCF, AGA
Author at InflammatoryBowelDisease.net
EDUCATION
Crohn’s and Colitis Congress conference
P2PEP Conference
Digestive Disease Week Conference
Oley Foundation conference online attendee
HealtheVoices Conference
2017
PRESENTATIONS/PROJECTS/ADVOCACY WORK
University of Michigan IBD Patient Advisory Board member
University of Chicago IBD Patient Advisory Board member
Faculty presenter at the CCF Clinical Trials Workshop Presentation: How Patients Feel About the Endpoints
Consultant to CCF, Janssen, UCB, Abbvie
CCF Patient Advisory Task Force member
Author at InflammatoryBowelDisease.net (formerly CrohnsDisease.com)
DripDrop ORS Ambassador
Twitter chat host: Dating and Intimacy with IBD for #IBDSC in partnership with Janssen Biotech
Co-presenter (with Dan Sharp): What Patients Learn About IBD on the Internet
Twitter chat host for CCF on Clinical Trials
EDUCATION
Digestive Disease Week conference
Advances in IBD conference
HealtheVoices conference online attendee
P2PEP
University of Chicago patient education night
Health Union conference
2016
PRESENTATIONS/PROJECTS/ADVOCACY WORK
Presentation: IBD and Mental Health Presented at P2PEP
Presentation: IBD and Dating/Intimacy. Presented at P2PEP
University of Michigan IBD Patient Advisory Board member
University of Chicago IBD Patient Advisory Board member
Patient panel member for IBD Unmasked campaign
Consultant to CCF, Takeda, Janssen
Co-developer of IBD Peer Mentorship program at University of Chicago
DripDrop ORS Ambassador
HealtheVoices advisory board
Author at CrohnsDisease.com
Member and consultant for IBD Social Circle in partnership with Janssen Biotech
Host of 2 Twitter chats for #IBDSC in partnership with Janssen Biotech
EDUCATION
Digestive Disease Week conference
Advances in IBD conference
HealtheVoices conference
BioExperience Tour at Janssen Pharmaceuticals
University of Chicago Patient Education night
2015
PRESENTATIONS/PROJECTS/ADVOCACY WORK
Co-founded Gut Over Here, You Guys and held first meetup in Washington DC
IBD Round Table speaker in all 2015 episodes
HealtheVoices Patient Advisor and speaker
Camp Oasis Michigan LIT program leader and counselor
CCF Twitter chat co-host (with Dr. Peter Higgins and Dan Sharp) on biologics
Co-host of Twitter chat: Adolescence and IBD for #IBDSC sponsored by Janssen Biotech
Co-host: Teen Life and IBD Twitter chat for #IBDSC sponsored by Janssen Biotech
Interview with Sunny Anderson of Food Network
DripDrop ORS ambassador
IBD Social Circle member
University of Michigan IBD Patient Advisory Board member
University of Chicago IBD Patient Advisory Board member
PACT (Precision Approaches to Crohn’s Therapy) Expert Panel member
Consultant to CCFA, Janssen, UCB, Takeda
Cook for A Cure event guest
EDUCATION
Digestive Disease Week conference
Advances in IBD conference
Why Haven’t We Cured IBD?’ University of Chicago patient education night
HealtheVoices conference
2014
PROJECTS/PRESENTATIONS/ADVOCACY WORK.
Camp Oasis Michigan LIT Program Leader and counselor
Host of Inflamed & Untamed IBD patient meetup event in Orlando, Florida
CCFA Take Steps volunteer
Moderator of live Facebook discussion between patients and clinicians: IBD and Mental Wellness sponsored by Janssen Biotech
IBD Round Table speaker on all episodes
DripDrop ORS ambassador
Host: IBD Pajama Party live U-stream discussion for teen girls with IBD
IBD Social Circle member
Get Your Guts in Gear bike ride for IBD volunteer
University of Michigan Patient Advisory Board member
University of Chicago Patient Advisory Board member
Co-host of Gut Together patient meetup in Orlando with The Great Bowel Movement
EDUCATION
Digestive Disease Week conference
Advances in IBD Clinical and Research conference
Oley Foundation annual conference
2013
PROJECTS/PRESENTATIONS/ADVOCACY WORK
IBD Round Table speaker on all episodes
CCFA Camp Oasis Michigan LIT Program Director and counselor
Get Your Guts in Gear bike ride for IBD volunteer
CCFA Take Steps volunteer
Featured special guest at Intense Intestines Foundation’s Climb for IBD event
2012
PRESENTATIONS/PROJECTS/ADVOCACY
Panelist of the Crohn’s Blogger Summit sponsored by UCB
CCFA Camp Oasis Michigan counselor
Co-Founder of Girls with Guts
Girls with Guts original advocacy meet up in Chicago
Get Your Guts in Gear bike ride for IBD participant
CCFA Take Steps volunteer
2011
PRESENTATIONS/PROJECTS/ADVOCACY
Founded Inflamed & Untamed on September 1, 2011
CCFA Camp Oasis Michigan Counselor
CCFA Take Steps volunteer
CCFA Movie Gala fundraiser volunteer
Host of live U-stream discussion on IBD with Jackie Zimmerman of Blood, Poop, and Tears
Awards
See them on this page!