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My Life As An Advocate in 2011

2011 was the beginning of my online advocacy but I had already been involved in things like Camp Oasis and many other patient events through my hospital and the CCFA for years. Here is a look at 2011: Volunteering at the CCFA Take Steps walk for Crohn’s and colitis, spending a week as a counselor at Camp Oasis (summer camp for kids and teens who have IBD), and a few other random photos. 

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Take Steps for Crohn's & Colitis Walk 2011

Take Steps for Crohn’s & Colitis is a walk that raises money for research and cures put on by the Crohn’s and Colitis Foundation of America. This year I went with my friend Alison who I know from Camp Oasis. She was the honored hero of the walk and gave a speech. We spent time with some of our friends from Camp Oasis while we were there.

Camp Oasis 2011

2011 was an off year for me at Camp. I had just gotten out of the hospital only 2 days before after being there for 6 weeks. I was still tapering off prednisone, underweight, and had my PICC line in for TPN. My co-counselor this year was my friend Katie. She had been diagnosed with lymphoma cancer that year and was infusing chemotherapy throughout the week at camp via a pump in a fanny pack. Though the two of us were not doing well we made the absolute most of our week and had the best time we could because we love camp so much.

Katie passed away only 3 months later. I was so amazed by her poise and determination during our week at camp. She was going through so much but she put everyone else ahead of her to ensure that our campers were taken care of and had the best week of their year. She danced, she kayaked, she did everything she could at camp and smiled the entire way. We were the only cabin with 3 counselors and were teamed up because of our health so that we could trade off and take breaks. Actually they made us! The nurses would come find us and drive us from whatever activity we were doing to the medical center and made us lay down and take naps. Camp medical center staff is the best. It was still a great year at camp, just very different considering everything.