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My Life as An Advocate in 2014

Some of the projects and events I was involved in during 2014. Scroll to see all albums. Hover over a photo to read the caption or click to expand.

IBD Friends Meet in Chicago + Gut Together Chicago and Fort Wayne

Pictures from spending some time with some IBD friends in Chicago along with 2 Gut Together events by GBM.

Camp Oasis 2014

Camp Oasis is a summer camp for children and teens who have Crohn’s disease or ulcerative colitis. I was back in charge of the LIT (Leaders in Training) program and this year had Dan Sharp as my co-counselor. The two of us came to camp on TPN and had some long hospital stays this year. It took a lot of work for the both of us to get to camp but we made it happen because it’s so important to us and definitely heals the mind being around others who have IBD. There isn’t a place on earth I love more than this one. Gut Girl made an appearance again as the theme of camp was superheroes again. 

The LIT program is a special leadership program made up of the oldest male and female campers at camp. They learn not only to be leaders at camp but also in life as they go off to college with IBD and transition into having a more independent role in the management of their IBD. 

For more information about Camp Oasis visit the Crohn’s and Colitis Foundation.

 

Swimming with Courage and Crohn's Documentary

My friend, Ryan Stephens is a Crohn’s patient and advocate who swam across Lake Erie to raise funds and awareness for IBD. The swim was turned into a documentary. Dan and I drove to the shore to support our friend and I was also part of filming but that footage never made it into the documentary but you can see some of it on my YouTube channel. It really was just an honor to be there to support Ryan and the incredible task that he took on. We are very proud of him.

IBD Orlando Meetup + Oley Foundation Conference

I was awarded a travel scholarship to attend the Oley Foundation conference and while I was in Florida I hosted a meetup and had the best time with new IBD friends who attended. 

The Oley Foundation supports patients on intravenous and tube feeding therapies. 

Get Your Guts in Gear Ride for IBD

GYGIG is a bike ride that raises funds for Inflammatory bowel disease. This was my 3rd year participating and this time the ride was held in Ohio with day 2 starting and finishing at Cedar Point. 

After the ride I spent the rest of the weekend with Dan. We spent a day at Cedar Point riding roller coasters, seeing a movie, and driving around. Somehow we managed to get lost and end up on private NASA property and witnessed someone getting arrested… it was all very strange space corn stuff.

Digestive Disease Week Conference and 1st Ever IBD Social Circle Meeting

The very first IBD Social Circle was formed in 2014 consisting of 7 patient advocates. The meeting took place at DDW and while we were there we got to attend the conference. 

Camp Oasis 2014

Dan